Differences in well-being of informal caregivers: a comparative cross-sectional study of Polish caregivers

Magdalena Mucha, Magdalena Leszko, Andrzej Potemkowski


Introduction: The diagnosis of dementia can significantly affect all aspects of a caregiver’s life. Although providing care can be a positive experience, it can also have serious negative consequences for the caregiver’s mental and physical health. As caregiving tasks accumulate as the disease progresses, caregivers may choose to place a disease-affected family member in a nursing home.

The aim of this study was to examine differences in depression and caregiver burden among caregivers based on their parents’ care setting (home vs. nursing home).

Materials and methods: A total of 100 caregivers participated in the study. Data collection included care-recipient and informal caregiver’s demographic characteristics, duration of care, levels of depression, and caregiver burden.

Results: Caregivers who decided to place a parent in a nursing home reported significantly lower levels of overall subjective caregiver burden than caregivers who provided care at home, t(98) = 2.884; p = 0.004. No significant differences were found in their levels of depression.

Conclusions: Healthcare professionals should be alert to symptoms of caregiver burden and depression among caregivers and refer them to appropriate resources for help and assistance.


Alzheimer’s disease; caregiving; nursing home placement

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Główny Urząd Statystyczny. Informacja o sytuacji osób starszych na podstawie badań Głównego Urzędu Statystycznego. Statistics Poland; 2019. https://stat.gov.pl/obszary-tematyczne/osoby starsze/osoby-starsze/informacja-o-sytuacji-osob-starszych-na-podstawie-badan glownego-urzedu-statystycznego,1,2.html (12.09.2020).

Główny Urząd Statystyczny. Prognoza ludności na lata 2014–2050. Warszawa: Zakład Wydawnictw Statystycznych; 2014.

Barile JP, Thompson WW, Zack MM, Krahn GL, Horner-Johnson W, Haffer SC. Activities of daily living, chronic medical conditions, and health-related quality of life in older adults. J Ambul Care Manage 2012;35(4):292-303. doi: 10.1097/JAC.0b013e31826746f5.

Karantzoulis S, Galvin JE. Distinguishing Alzheimer’s disease from other major forms of dementia. Expert Rev Neurother 2011;11(11):1579-91. doi: 10.1586/ern.11.155.

Uddin MS, Stachowiak A, Mamun AA, Tzvetkov NT, Takeda S, Atanasov AG, et al. Autophagy and Alzheimer’s Disease: From Molecular Mechanisms to Therapeutic Implications. Front Aging Neurosci 2018;10:04. doi: 10.3389/fnagi.2018.00004.

Alzheimer’s Association. Alzheimer’s disease facts and figures. Alzheimers Dement 2020;16(3). https://www.alz.org/media/Documents/alzheimers-facts-and-figures.pdf (18.07.2020).

Burns A, Iliffe S. Alzheimer’s disease. BMJ 2009;338:b158. doi: 10.1136/bmj.b158.

Najwyższa Izba Kontroli. NIK o opiece nad chorymi na Alzheimera. Ministerstwo Zdrowia; 2017. https://www.nik.gov.pl/aktualnosci/nik-oopiecenadchorymi-na-alzheimera.html (18.08.2020).

Guerreiro R, Bras J. The age factor in Alzheimer’s disease. Genome Med 2015;7:106. doi: 10.1186/s13073-015-0232-5.

Snyder L. Care of patients with Alzheimer’s disease and their families. Clin Geriatr Med 2001;17(2):319-35.

Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci 2009;11(2):217-28.

Alzheimer’s Disease International. World Alzheimer Report 2015. London: Alzheimer’s Disease International; 2015. https://www.alzint.org/u/WorldAlzheimerReport2015.pdf (18.08.2020).

OECD Economic Surveys: Poland 2014. Paris: OECD Publishing; 2014.

Błędowski P. Zaspokajanie potrzeb opiekuńczych ludzi starych. In: Szatur--Jaworska B, editor. Strategie działania w starzejącym się społeczeństwie. Tezy i rekomendacje. Warszawa: Biuro Rzecznika Praw Obywatelskich; 2012.

Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist 1990;30(5):583-94. doi: 10.1093/geront/30.5.583.

Cohen CA, Colantonio A, Vernich L. Positive aspects of caregiving: rounding out the caregiver experience. Int J Geriatr Psychiatry 2002;17(2):184-8. doi: 10.1002/gps.561.

Taylor DH Jr, Ezell M, Kuchibhatla M, Østbye T, Clipp EC. Identifying trajectories of depressive symptoms for women caring for their husbands with dementia. J Am Geriatr Soc 2008;56(2):322-7. doi:10.1111/j.1532-5415.2007.01558.x.

Dunkin JJ, Anderson-Hanley C. Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention. Neurology 1998;51(1 Suppl 1):S53-67. doi:10.1212/wnl.51.1_suppl_1.s53.

Chang HY, Chiou CJ, Chen NS. Impact of mental health and caregiver burden on family caregivers’ physical health. Arch Gerontol Geriatr 2010;50(3):267-71. doi: 10.1016/j.archger.2009.04.006.

Spector J, Tampi RR. Caregiver depression. Ann Long-Term Care 2005;13(4):34-40.

Miller EA, Rosenheck RA, Schneider LS. Caregiver burden, health utilities, and institutional service costs among community-dwelling patients with Alzheimer disease. Alzheimer Dis Assoc Disord 2010;24(4):380-9. doi:10.1097/WAD.0b013e3181eb2f2e.

Sowada C, Sagan A, Kowalska-Bobko I, Badora-Musial K, Bochenek T, Domagala A, et al. Poland: Health System Review. Health Syst Transit 2019;21(1):1-234.

Vitaliano PP, Zhang J, Scanlan JM. Is caregiving hazardous to one’s physical health? A meta-analysis. Psychol Bull 2003;129(6):946-72. doi: 10.1037/0033-2909.129.6.946.

Schulz R, Eden J, editors. Committee on Family Caregiving for Older Adults; Board on Health Care Services; Health and Medicine Division; National Academies of Sciences, Engineering, and Medicine. Washington (DC): National Academies Press (US); 2016.

Beck AT, Ward CH, Mendelson M, Mock J, Erbaugh J. An inventory for measuring depression. Arch Gen Psychiatry 1961;4:561-71. doi: 10.1001/archpsyc.1961.01710120031004.

Zawadzki B, Popiel A, Pragłowska E. Charakterystyka psychometryczna polskiej adaptacji Kwestionariusza Depresji BDI-II Aarona T. Becka. Psychol Etol Genet 2009;19:71-95.

Raś P, Opala G, Ochudło S. Kwestionariusz poczucia obciążenia osób opiekujących się chorymi z otępieniem: nowe narzędzie badawcze. Psychogeriatr Pol 2005;2(1):21-31.

Corey KL, McCurry MK. When Caregiving Ends: The Experiences of Former Family Caregivers of People With Dementia. Gerontologist 2018;58(2):e87-e96. doi: 10.1093/geront/gnw205.

Ornstein K, Gaugler JE. The problem with “problem behaviors”: a systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the dementia patient-caregiver dyad. Int Psychogeriatr 2012;24(10):1536-52. doi: 10.1017/S1041610212000737.

Brodaty H, Connors MH, Xu J, Woodward M, Ames D, PRIME study group. Predictors of institutionalization in dementia: a three year longitudinal study. J Alzheimers Dis 2014;40(1):221-6. doi: 10.3233/JAD-131850.

Schulz R, Sherwood PR. Physical and mental health effects of family caregiving. Am J Nurs 2008;108(9 Suppl):23-7. doi: 10.1097/01.NAJ.0000336406.45248.4c.

Rospenda KM, Minich LM, Milner LA, Richman JA. Caregiver burden and alcohol use in a community sample. J Addict Dis 2010;29(3):314-24. doi: 10.1080/10550887.2010.489450.

Kong EH. Family caregivers of older people in nursing homes. Asian Nurs Res (Korean Soc Nurs Sci) 2008;2(4):195-207. doi: 10.1016/S1976-1317(09)60001-3.

Robinson-Whelen S, Tada Y, MacCallum RC, McGuire L, Kiecolt-Glaser JK. Long-term caregiving: what happens when it ends? J Abnorm Psychol 2001;110(4):573-84. doi: 10.1037//0021-843x.110.4.573.

Leszko M, Iwański R, Bugajska B. Prisoners of Care: The Experience of Loneliness among Caregivers of Individuals with Alzheimer’s Disease. Paedagogia Christiana 2020;45(1):171-84. doi: 10.12775/PCh.2020.011.

DOI: https://doi.org/10.21164/pomjlifesci.734

Copyright (c) 2021 Magdalena Mucha

License URL: https://creativecommons.org/licenses/by-nc-nd/3.0/pl/